Parents looking after a child with a physical or learning disability or a life-limiting condition don’t often see themselves as carers.
Being the parent of a child with a disability can bring added pressures and problems. The time you spend looking after your child may well go far beyond that of most parents. You may also find it difficult to find the most appropriate help and support for you and your child and you may have to face the huge uncertainties, stresses and challenges of managing your child’s condition.
Research shows that it can cost almost three times more to bring up a child with a disability, compared with other children. This, added to the fact that many parents of disabled children are unable to work because of caring responsibilities, means that there is a high risk of poverty.
As a parent carer you may need information about:
- where to find help and support, including childminding and respite care
- clubs and activities suited to your child’s needs
- support for yourself
- benefits for you and your child
- other sources of funding for essential items or equipment
How we support parent carers
Carers Bucks provides specific support and advice to parents of children under 18 who have physical, learning, emotional or behavioural difficulties. As a parent you may meet a number of professionals all looking after the needs of your child. At Carers Bucks we are here to look at after your needs and to support you as a carer.
We support parent carers in a number of ways:
- emotional support
- advice and information for your particular caring situation
- information days and events
- signposting to other relevant agencies for support and services
- support to complete benefits forms
- young carers project for siblings
- access to grants from local and national grantfunders
Choosing a School: How to find the right school for your child
Morning Event Saturday 30th March from 9.30am (for bacon butties and pastries) until 1pm at The Coach House, Green Park, Aston Clinton, HP22 5NE
For many parents and carers, the choice of schools is one of the most significant and challenging dilemmas they will face. Despite the frameworks and guidelines, the truth is that all schools differ in character and approach. Whilst catchment areas simplify the choice for many mainstream children, for those with additional needs the suitability of the teaching and therapies is the driving factor. But how can parents find this out?
During the morning speakers from FACT Bucks, from Bucks SENDIAS service and from the Bucks Council SEN team will
- give comprehensive guide to the various types of school which exist within the County and nearby,
- help you think through what you should be looking for and what questions to ask,
- identify sources of information and consider ways to discern which school best fits your child or young person’s needs
- explain the processes that have to be followed in moments of transfer from one school to another.
There will also be the opportunity for questions and to share experiences as they relate to the situations in which we find ourselves. We do hope this will empower parent carers to seek the support they need and for families to understand their position. All parent carers are welcome but there will be no childcare on site. There is no need to book but if you are intending to come and you can drop us an email to firstname.lastname@example.org it will help us ensure there are enough bacon rolls and pastries which will be served from 9.30am.
Ena – FACT Bucks Admin
Influencing decisions that affect children and young people with additional needs in Buckinghamshire
PO Box 1032, Aylesbury, Bucks, HP22 9NL
Registered Charity Number 1155067